sed with the condition in April last year his parents Shelly and Rob have taken him to the hospital about 150 times.
The good news is that there is a 90% survival rate for people with CGD who get bone marrow transplants from a suitable donor. So Alex’s father Rob is on a mission to find a suitable donor for Alex and others. He has organised a bone marrow donor drive, with a goal to educate and ask suitable donors to register on the day.
Representatives from the Australian Bone Marrow Donor Registry and a local Elllenbrook bone marrow recipient will speak at the information session to be held at 33 Comserve Loop, Ellenbrook from noon to 4pm on October 26th.
Let’s do what we can to spread this message about a local boy in need of the communities assistance.
Source; Ellenbrook Advocate 1st October 2014